Zach was diagnosed with stage 4 adenocarcinoma esophageal cancer in January 2014. This blog is to help us process everything, streamline how we share information with our family and friends, and ask for specific prayer requests. We serve a great God!
Wednesday, February 26, 2014
Aspen Leaf fundraiser
Monday, February 24, 2014
Round #3 and Disappointing News
Zach's final week of rest before round #3 was more difficult than we thought it would be. He is having difficulties eating. The chemotherapy is hard on his esophagus. This is why we really appreciate the wonderful meals many of you are spoiling us with! The soups and other soft foods are easy to eat and digest.
Along with eating difficulties, Zach has had severe bone pain from all of the white blood cells that are being expelled from his bones. This is a good thing however because it means his immune system is strong. But the pain is very hard to deal with. Medication and a heating pad help.
Friday afternoon we met with Dr. Dan. It is the first time we have seen him since Zach's diagnosis in early January and we were relieved to speak to him and hear his thoughts on Zach's progress. Without any new scans or images Dr. Dan was only able to look at Zach's blood work. He is encouraged by the fact Zach's protein levels dropped 3 weeks back from 9.9 to 4.0. When we learned of Zach's stage 4 diagnosis, we did not get the impression there was a lot of hope based on the widespread and aggressive nature of the cancer. But we were definitely feeling more hopeful Friday based on Dr. Dan's outlook.
Friday marked the halfway point of Zach's treatment. So we began to talk hypotheticals. If the PET scan in April returns a favorable outcome, then Zach will begin 6 weeks of daily radiation or continue with 2 additional rounds of chemotherapy before beginning radiation. Either way he will have a couple of week rest before any more treatment continues. Radiation would only take 10 minutes a day and Zach would likely be able to work every day. The chemotherapy routine will have to change a bit from what he is receiving now. The chemoball makes him far too sick to be able to work full time. It is imperative Zach doesn't miss too much more work beyond mid-April or else his job contract and benefits are in jeopardy. Dr. Dan felt confident that Zach could continue 2 additional rounds without the chemoball and still aggressively fight the cancer. This would likely allow him to work every day to order keep both this job and his benefits. (Rest assured, we will pay homage to the fanny pack with a moment of silence if the need arises.)
We left our meeting on Friday feeling encouraged. But somewhere between MSTI and our home Zach developed a fever. His white blood cell count was very high on Friday (which translates into a strong immune system!) So no one knows why the fever developed. But fevers are dangerous. We were ready to make a trip to the emergency room per doctor's orders if it jumped to 100.5 but it stayed just below that mark for several hours. Zach slept off the fever that evening. While he was in bed, I was trying to juggle 2 kids' baths, dinners, pajamas and diaper changes. If 1 child wasn't crying then the other was. I was beginning to get hangry (your new word for the day: hungry/angry) as the evening went on but I dared not sit down and feed myself lest both children lose their minds at the same time. At one point I just had to sit down and laugh at the ridiculousness playing out in our home. The job of mom is rarely a dry, clean or neat one.
Cancer has so many ups and downs. The rest of the weekend brought ups. Zach felt good. Sunday afternoon we spent several hours at school so Zach could get caught up and I helped with grading. He had a hard time unwinding Sunday night because of the steroids he takes leading up to a new round of chemo. There is also anxiety that builds up. Chemo is not fun.
This morning (Monday) Zach started round #3. We began the day receiving disappointing news. Zach's CEA count has risen to 8. We were told not to put too much stock into these numbers: a drop in counts is good but a slight rise is not the end of the world. We are thankful the level did not rise back to where it began at 9.9. But in order for Zach to start radiation in April (and be done with chemotherapy) his CEA count needs to be closer to 3. We have a ways to go. Our nurse explained to us that doctors often use the CEA count to determine whether a new scan should be given in the middle of treatment. They often see the CEA levels move up and down as chemo treatment progresses, with the ultimate goal of lowering the levels over time. If a spike in levels is evident, then a PET scan might be done to determine why there is a sudden increase. A spike did not happen in Zach's case so we were encouraged to continue to be positive and trust that the chemo is doing its job. It was demoralizing news--however you spin it.
We have seen some pretty amazing things take place in other's lives since Zach's diagnosis. We continue to believe in the power of prayer and God's plan. Please continue to pray Zach's levels drop. Feel free to text him with words of encouragement sometime this week! If he doesn't have your number make sure you let him know who it is :) 208-891-2113.
In closing, my friend Carla is a kindergarten teacher. Her students wrote letters to Zach with advice on how to beat this thing. We really enjoyed reading the letters as Zach sat for his infusion today. The usual suspects--eating more veggies and sleeping--were mentioned. Our 2 favorites: play more video games and snuggle with something to feel better.
Along with eating difficulties, Zach has had severe bone pain from all of the white blood cells that are being expelled from his bones. This is a good thing however because it means his immune system is strong. But the pain is very hard to deal with. Medication and a heating pad help.
Friday afternoon we met with Dr. Dan. It is the first time we have seen him since Zach's diagnosis in early January and we were relieved to speak to him and hear his thoughts on Zach's progress. Without any new scans or images Dr. Dan was only able to look at Zach's blood work. He is encouraged by the fact Zach's protein levels dropped 3 weeks back from 9.9 to 4.0. When we learned of Zach's stage 4 diagnosis, we did not get the impression there was a lot of hope based on the widespread and aggressive nature of the cancer. But we were definitely feeling more hopeful Friday based on Dr. Dan's outlook.
Friday marked the halfway point of Zach's treatment. So we began to talk hypotheticals. If the PET scan in April returns a favorable outcome, then Zach will begin 6 weeks of daily radiation or continue with 2 additional rounds of chemotherapy before beginning radiation. Either way he will have a couple of week rest before any more treatment continues. Radiation would only take 10 minutes a day and Zach would likely be able to work every day. The chemotherapy routine will have to change a bit from what he is receiving now. The chemoball makes him far too sick to be able to work full time. It is imperative Zach doesn't miss too much more work beyond mid-April or else his job contract and benefits are in jeopardy. Dr. Dan felt confident that Zach could continue 2 additional rounds without the chemoball and still aggressively fight the cancer. This would likely allow him to work every day to order keep both this job and his benefits. (Rest assured, we will pay homage to the fanny pack with a moment of silence if the need arises.)
We left our meeting on Friday feeling encouraged. But somewhere between MSTI and our home Zach developed a fever. His white blood cell count was very high on Friday (which translates into a strong immune system!) So no one knows why the fever developed. But fevers are dangerous. We were ready to make a trip to the emergency room per doctor's orders if it jumped to 100.5 but it stayed just below that mark for several hours. Zach slept off the fever that evening. While he was in bed, I was trying to juggle 2 kids' baths, dinners, pajamas and diaper changes. If 1 child wasn't crying then the other was. I was beginning to get hangry (your new word for the day: hungry/angry) as the evening went on but I dared not sit down and feed myself lest both children lose their minds at the same time. At one point I just had to sit down and laugh at the ridiculousness playing out in our home. The job of mom is rarely a dry, clean or neat one.
Cancer has so many ups and downs. The rest of the weekend brought ups. Zach felt good. Sunday afternoon we spent several hours at school so Zach could get caught up and I helped with grading. He had a hard time unwinding Sunday night because of the steroids he takes leading up to a new round of chemo. There is also anxiety that builds up. Chemo is not fun.
This morning (Monday) Zach started round #3. We began the day receiving disappointing news. Zach's CEA count has risen to 8. We were told not to put too much stock into these numbers: a drop in counts is good but a slight rise is not the end of the world. We are thankful the level did not rise back to where it began at 9.9. But in order for Zach to start radiation in April (and be done with chemotherapy) his CEA count needs to be closer to 3. We have a ways to go. Our nurse explained to us that doctors often use the CEA count to determine whether a new scan should be given in the middle of treatment. They often see the CEA levels move up and down as chemo treatment progresses, with the ultimate goal of lowering the levels over time. If a spike in levels is evident, then a PET scan might be done to determine why there is a sudden increase. A spike did not happen in Zach's case so we were encouraged to continue to be positive and trust that the chemo is doing its job. It was demoralizing news--however you spin it.
We have seen some pretty amazing things take place in other's lives since Zach's diagnosis. We continue to believe in the power of prayer and God's plan. Please continue to pray Zach's levels drop. Feel free to text him with words of encouragement sometime this week! If he doesn't have your number make sure you let him know who it is :) 208-891-2113.
In closing, my friend Carla is a kindergarten teacher. Her students wrote letters to Zach with advice on how to beat this thing. We really enjoyed reading the letters as Zach sat for his infusion today. The usual suspects--eating more veggies and sleeping--were mentioned. Our 2 favorites: play more video games and snuggle with something to feel better.
Ben and Zach today at MSTI.
Mr. Oliver earned his keep at his Grandma Kathi's by doing a bit of yard work.
I bet I am not the only parent who has taken 3,000 pictures of child #1 and at this rate is on track to meet that quota for child #2…never. So, here is adorable Max and my attempt to play catch up. With everything going on I haven't noticed how much he has grown until I look at this picture.
Saturday, February 15, 2014
Hair: No Más!
Several concerned friends and family members contacted me this week because there haven't been any blog updates and they feared that meant bad news. Rest assured, no bad news to share this week. We have just settled into our new life with cancer and there isn't much to share. Eventually the shock wore off and we have all adjusted to what our lives now look like. I am guessing next week will also look quite "normal."
Zach worked every morning this week. It was exhausting at times but he pushed through it. He managed his side-effects with medication. We are incredibly thankful that some of the worst sounding side effects haven't affected Zach.
In closing, I want to thank Oliver Finley Academy of Cosmetology. This was the school that sent 20 hairstylists-in-training to the Rocky/Eagle game last month to shave several hundred heads. This week Zach decided it was time to get rid of the stragglers on top of his head that chemo hadn't killed off yet. He stopped by Oliver Finley and had the last few hairs shaved off. The sweet stylist didn't charge him. We appreciate even these small gestures of support and kindness.
Zach worked every morning this week. It was exhausting at times but he pushed through it. He managed his side-effects with medication. We are incredibly thankful that some of the worst sounding side effects haven't affected Zach.
In closing, I want to thank Oliver Finley Academy of Cosmetology. This was the school that sent 20 hairstylists-in-training to the Rocky/Eagle game last month to shave several hundred heads. This week Zach decided it was time to get rid of the stragglers on top of his head that chemo hadn't killed off yet. He stopped by Oliver Finley and had the last few hairs shaved off. The sweet stylist didn't charge him. We appreciate even these small gestures of support and kindness.
My brother Mitch and his girlfriend Jessica with Max. Enjoying breakfast after church!
One stylish dude!
Oliver's new reading nook! This busy little boy stops for nothing except for the opportunity to look at books. On days when Zach is exhausted it is a nice place to lay down and let Oliver "read" to him.
Crazy about this little guy.
Oliver's outfit of choice.
Valentine's dinner with Mitch and Jessica. Zach invited us along and Mitch and Jessica were gracious enough to agree. As Zach so aptly put it: nothing says Happy Valentine's Day like spending it with your sister :)
Why spend a fortune on dessert at a fancy restaurant when you can get a dozen Krispy Kreme's instead?
Zach has never been a fan of donuts. But he now has strange cravings during chemotherapy. So we made the KK trip for him…and he only ate 1 donut! There is something seriously wrong with that.
Friday, February 7, 2014
Goodbye, Chemoball!
This week was pretty awful for Zach. And I know it is not going to be his worst. Immediately after his treatment on Monday the side effects hit. His nausea was barely controllable with medication and at times not even that could help. Zach's lower back and muscles ached very badly from the infusions. His fatigue was stronger than anything he has felt so far and everything he ate had a terrible taste to it. His nutritionist suggested he begin eating foods he wasn't used to. Eating something familiar would almost certainly lead to disappointment during treatment when the food didn't taste like what he was used to. But if Zach eats something he is not accustomed to then he won't associate a prior taste or experience with that dish. And it won't be "ruined." So he is trying new f00ds--pineapple juice being one.
Zach had his chemoball removed today--and couldn't be happier. He immediately perked up when it was unhooked. That thing is a real drag! We are very pleased with his care at MSTI in Meridian. I appreciate the staff know us by name. I am beginning to realize Zach is more than a patient and the longer he spends in this new world of ports, chemo, hospitals and side effects. It is our new life and we hope it is a long one.
Zach had his chemoball removed today--and couldn't be happier. He immediately perked up when it was unhooked. That thing is a real drag! We are very pleased with his care at MSTI in Meridian. I appreciate the staff know us by name. I am beginning to realize Zach is more than a patient and the longer he spends in this new world of ports, chemo, hospitals and side effects. It is our new life and we hope it is a long one.
I am incredibly thankful for Zach's grandma Shirley and her husband Steve for grocery shopping, shoveling our driveway, and putting together a belated birthday present for Oliver--a table and chairs. (I will teach that little boy to sit still for at least 30 seconds at a time!) Stacy, a high school classmate I haven't seen in over 15 years brought over dinner this week. Nathan and Lynette, friends and colleagues of Zach's, also treated us to dinner. Chris, a family friend folded our laundry. Every week I hear from people we have never met. But they are offering heartfelt encouragement and hope through God. I would not be getting through this if it weren't for my mom. She drops everything to come to my rescue to watch the little boys so I can tend to Zach's needs. I developed a bad infection and a high fever this week. She welcomed Oliver for a 2-night slumber party at her place because I didn't have the energy to chase those big brown eyes around! My aunt Christi and cousin Chelan were in town and gladly accommodated the 2 little boys spending the day with them so I could take Zach on errands and help him fight the fatigue that makes him want to sleep the hours away. My mother in law Wendy came over and picked up Max Friday afternoon so I could drive myself to a doctor's appointment and then later take Zach to MSTI. She returned Max and also brought dinner. This is what every week is like! You who are helping us with laundry, dinner, groceries, little boy care and prayers are amazing.
Zach's goal is to teach in the mornings for the next 2 weeks. I know this is going to be difficult for him. The side effects of chemo are cumulative and will only get more difficult to endure. Please pray for strength and for the side effects to remain at bay so he can do what he loves!
Goodbye, chemoball!
Oliver enjoying a pre-dinner treat with Grandma Kathi! Sure beats being at home with mom and dad.
Oliver's great aunt Christi and cousin Chelan treated him to quite the bubble bath. What a bathing beauty!
Wednesday, February 5, 2014
Return of the Fanny Pack and Other GOOD NEWS!
The fanny pack is back. It is still lacking in style (meaning Zach still won't let me bedazzle it or use puff paints.) Round #2 of chemotherapy began Monday morning. It was a busy day that began with labs. Those are done first thing to make sure Zach is healthy enough to continue with another round of chemo. There are a number of markers the labs look at in Zach's blood. The most important is the number of neutrophil, a type of white blood cell. The neutrophil is the first line of defense when fighting infection. Zach's levels are pretty good so he was able to continue with this round. The other marker the labs check for is Zach's platelet count. His numbers were strong so a blood transfusion wasn't necessary.
Zach spent a full day at MSTI and was again sent home with his chemo ball (the continuous infusion he wears in the fanny pack until Friday afternoon.) The side effects hit him almost immediately upon arriving home Monday and continued into Tuesday. He battled fatigue and nausea all day long. The nausea finally began to subside as he took his medication. I'm proud of Zach--even with all the rotten side effects he still forced himself to drink and eat. Tuesday afternoon he met with his prayer partner at church then drove to Aqua Tots to watch Oliver swim with my mom. He told me that watching Oliver swim was the highlight of his day!
It was a struggle for Zach to get up and moving on Wednesday but we have busy boys who demand attention! Zach worked out Wednesday morning and had lunch with my dad and I after. His workouts have changed drastically in the past month from CrossFit to a stationery bike and a few weight machines. His body just doesn't allow him to do what he used to do.
We have GOOD NEWS! Zach's CEA levels are down. The carcinoembryonic antigen (CEA) measures the amount of protein that is in Zach's blood. High protein levels mean the presence of cancer cells. In January his levels were at 9.9 and by February his levels dropped to 4.0. Ideally, we would like the number to drop below 3.1. The drop in numbers means the tumors are responding to treatment. This is an answer to our prayers! God is faithful.
Zach begins Round #2 of chemo! Thank goodness for phones, Twitter and lots of visitors to pass the time.
Next time I will get more pictures…
…so people don't think the only visitor was his wife.
Zach and my dad Pat at Gino's for lunch.
The Padre and me.
Sweet, sparkly-eyed Oliver at home with Grandma Kathi.
Sunday, February 2, 2014
Pink Shoes and Hairdos
Coaches vs. Cancer is a nationwide program that involves coaches, players and the community in the fight against cancer. Often the money that schools raise goes to local hospitals or into cancer research funding. Zach's brother Ben, an assistant coach for the men's basketball team, called me earlier this week to share some really touching news. The College of Idaho sold bright pink shirts with the school's logo emblazoned on front to raise money for the cause. The coaches and team wanted to offer our family the proceeds from the pink shirt fundraiser. We are surrounded by the most supportive and giving community.
We went to Friday night's game to cheer on the Yotes in our bright pink shirts. I was encouraged by the people I met who are following our story and praying for us.
C of I senior Zach Peterson (former Timberline athlete) bought these pink shoes for this weekend's games. It made us both teary to see what he wrote on them! He gave them to Zach after both games.
Zach and his stepdad Chuck.
Zach and his brother Ben.
Zach's mom Kris, her husband Mark, Ben and Zach.
The Idaho Press Tribune interviewed Zach at the C of I game:
On kind of a sad note, Zach will soon be sporting a new hairdo as we noticed the first patches of hair loss Saturday. But on the bright side his shipment of stylish hats from Nike will be here tomorrow--just in time to start a new round of chemo! Bring on the return of the fanny pack.
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